Weather of Arabia - The sun is considered a vital source of life on Earth. It provides us with energy and provides our body with the necessary vitamin D. However, there is a rare group of children who live in constant darkness and are unable to be exposed to the sun’s rays. These children suffer from a rare disease known as “children of the moon.” Is this disease? What are its causes?
Answer: XP is a rare genetic disorder characterized by the inability of the skin to repair damage caused by ultraviolet rays. In severe cases, it becomes necessary to completely avoid exposure to sunlight. This disease can appear in anyone regardless of gender. Or its origin, but Japanese people are six times more likely to develop the disease than people in the rest of the world, and cases of XP occur at a rate of one in 250,000 people.
Xeroderma pigmentosum is a recessive (non-contagious) hereditary disease. This means that in order for the child to be infected with it, he must carry two copies of the causative gene, one from the father and the other from the mother. Ultraviolet rays from the sun lead to the destruction of the genetic material (DNA) in the Skin cells, and in the normal state the body repairs this damage.
As for patients with xeroderma pigmentosum, the body does not repair this damage, and as a result, the skin becomes thin, and spots of color changes appear on it.
Individuals with People with XP have up to 1,000 times the risk of melanoma.
Children with this disorder are called “moon children,” and this nickname reflects the severe state of sensitivity they live in. It is not as romantic a situation as some imagine, but rather it is a great challenge that these children face.
The life of those suffering from xeroderma pigmentosum is a nocturnal one, as they have no choice but to stay indoors during the day, waiting for darkness to fall. It can be said that they are not vampires as they are portrayed in fairy tales, but they remain enemies of the sun, or in fact the sun is their enemy.
These individuals are called "moon children" or "lunars" due to their inability to appear normally except under the moonlight. While turning off the lights and entering darkness can terrify the hearts of normal children, those with this disease consider the darkness a sociable partner, as this darkness can have a positive effect on their psyche, during which they can leave their home confinement and wander the streets without fear of its darkness.
According to the statements of the Tunisian doctor Muhammad Al-Zaghal, who diagnosed many patients, this disease is considered fatal for unprotected individuals, as it grows in the face and can cause it to be disfigured, and those infected with the disease can only live for between 10 and 15 years , but thanks to prevention. And with the right health care, people can get through this and live to be seventy or even eighty years old.
Symptoms of this disease usually begin around the age of two years and include:
Although there is no effective treatment for this disease, there are strategies to deal with it and protect those affected, including the following:
These measures can help reduce damage resulting from the effects of the sun on people with this disease.
Moonchildren's disease is a rare disease that brings with it many challenges, but there is always hope, and efforts must be directed towards supporting research and raising awareness about this disease to ensure progress in treating it and providing better opportunities for moonchildren to live a healthy and happy life.
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